a post by Simone Vibert for DEMOS published on 21 June 2017
Demos has a long-standing interest in the social and financial impact of disability and health conditions. People living with serious health conditions can face a significant financial burden, a large part of which is the extra costs resulting from looking after one’s health or undergoing treatment. In new research released today,[1] Demos found that people with motor neurone disease (MND) incur average regular costs of £9,645 per year – this includes care costs, increased energy bills, travel in areas where public transport is inaccessible, and so on. They also incur one off costs (such as adapting their home or vehicle so it is wheelchair accessible) which typically amount to at least £2,175 over the course of the disease.
The scale of the extra costs we uncovered are staggering. However, our experience in assessing the financial impact of disability and health conditions has taught us that extra costs are only one side of the story. It is also vital to capture the hidden extent of unmet need: the things people go without in order to manage their finances.
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It is not a pretty story.
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